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3 things I learned from my intellectually disabled son

Harnessing the strength of people with intellectual disability, transforming assistantship into partnership with them.


About the talk

As a mother with a son affected with Fragile X syndrome - a genetic disorder - Emilie Weight believes that a diagnosis of disability can create opportunity, not despair. Her son's differences compelled her to question her inner self and her role in the world. With this new mindset she discovered his true superhero qualities when she stopped treating him like a patient and started treating him like a partner, leading her to three essential tools for how to approach life.

About the speaker

Emilie Weight · Patient advocate

Emilie Weight has a passion for transforming issues into opportunities. As a Change Program Office Manager and Future Patient Advocate at Merck KGaA, Darmstadt, Germany, based in Lyon, France, she connects the dots of her personal and professional ambitions by focusing on the positive outcomes and strengths of all situations. After joining our company in 2002 as an International Customer Relationship Management consultant, Emilie shifted her responsibilities in 2006 to a local position in commercial healthcare operations after her son was diagnosed with an intellectual disability. Today Emilie focuses on Change Management as well as the #asone4patient change agent initiative and has started a new role in October this year as Patient Advocate in France.

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