World MS Day
For over 20 years, Merck KGaA, Darmstadt, Germany, has been working to better understand MS and deliver solutions that improve the lives of all those affected by it. Follow #MSInsideOut on Twitter and LinkedIn to learn more about our initiatives that are building an Inside Out understanding of MS.
To mark World MS Day 2020, we are supporting MS International Federation (MSIF)`s campaign #MSConnections, which sets out to challenge social barriers, celebrate support networks and build community connection.
Having a chronic disease like multiple sclerosis can lead to social barriers leaving people affected feeling lonely and stigmatized. In a survey conducted by Multiple Sclerosis Society UK it was found that 3 in 5 people with MS feel lonely because of their condition1. At the same time we are part of a society that is much more connected than ever before. Modern technology brings us closer together and helps us make connections far beyond the traditional inner sphere of family, friends, neighbors and colleagues. Technology opens up new channels of communication and makes it faster and easier than ever for people to connect and find friendships and support.
Online activities like gaming are increasingly used as ways to socialize with others virtually and create a sense of community and wellbeing. Many gamers highly value the socialization aspects of gaming and e-sports. There is also research ongoing whether playing video games have an effect on cognitive issues.
On May 28th, 2020, we announced a global collaboration with Twitch, the world's leading service and community for multiplayer entertainment, for World MS Day May 30th.
In support of World MS Day and to show our commitment to understanding MS from the inside out, we are joining forces with Twitch. Through an 8-hour live stream with Twitch influencers and special guests on May 30, 2020, Merck KGaA, Darmstadt, Germany, and Twitch will give back to the MS community by virtually connecting people affected by the disease and raising awareness among young gamers to fight stigma. The live stream will also be used as a platform to raise money for Multiple Sclerosis International Federation (MSIF). The funds will go towards MSIF`s Informed Decision Making program which helps create digital resources that connect communities around the world so that people with MS have access to the best possible information, for free, and can make informed choices about their health and lives.
TO WATCH THE LIVESTREAM, LOG ON TO WWW.TWITCH.TV FROM 12pm/noon ET on MAY 30th, 2020.
World MS Day 2019
For World MS Day 2019, we supported MSIF`s campaign #MyInvisibleMS. To raise awareness on World MS Day and shine a light on the invisible symptoms of multiple sclerosis, real people with MS attended a creative workshop hosted by Merck to visualise the unseen burdens they live with day in, day out. These art pieces have been put together to form the My Invisible MS Art Gallery, which was used to raise awareness in 15 countries across the world on World MS Day 2019 and beyond.
Below you can see images from the My Invisible MS art gallery, including background pictures and videos from the workshop.
I had such an intense level of pain that I thought it was the most amount of pain that someone could ever have.
I couldn’t see straight, so I drew my eye out of my body.
I’m in a dark place with the symptoms that I’ve had so far…
I look like I’m perfect but in fact I have fatigue, I have no sensation in my hands, fingers or the left part of my body, but nobody sees it.
The aura of numbness and clumsiness follows you everywhere and only a few can see it.
I feel like a normal person who is falling apart under the heat of this illness.
she suffers from pain, she suffers from numbness, sometimes her vision, she definitely suffers from fatigue.
I’ve got a little pain, much more pain and the strongest pain. That’s the main thing for me that is invisible.