Understanding the Journey People Living with MS Face

Merck KGaA, Darmstadt, Germany, aims to better understand MS and enable others to do the same.


Revealing Real Lives, Real Stories

People Living with MS, Real Lives, Real Stories: Alfred's Story
Alfred's story

When my neurologist told me I had relapsing MS, there was no sense of empathy, no discussion about my options for support, no explanation about what MS is…

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People Living with MS, Real Lives, Real Stories: Marco's Story
Marco's story

As a carer for someone with MS, it is easy to feel insignificant, but I truly believe we are the unsung heroes.

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People Living with MS, Real Lives, Real Stories: Alexander's Story
Alexander's story

I was diagnosed with multiple sclerosis ten years ago at the age of 26, while working for Merck KGaA, Darmstadt, Germany.

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People Living with MS, Real Lives, Real Stories: David's Story
David's story

When I first started to lose the feeling in my left foot, I thought that maybe it was just some passing thing.

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People Living with MS, Real Lives, Real Stories: Stanca's Story
Stanca's story

At the time I was diagnosed with MS, there was no one I could talk to who would understand what I was going through.

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People Living with MS, Real Lives, Real Stories: Stephanie's Story
Stephanie's story

When I received my diagnosis of relapsing MS, I felt angry and distressed and not sure about my future or what this would mean.

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2018: #MSInsideOut Documentary

Announcement of collaboration with Shift.ms

Announcement of collaboration with Shift.ms

Shift.ms is the social network for people with multiple sclerosis. Founded by MSers, for MSers, the charity supports many thousands of recently diagnosed people across the world as they make sense of MS. It’s independent and it’s free.

Merck KGaA, Darmstadt, Germany and Shift.ms recently entered into a new form of collaboration. “We are pleased to be working as Executive Producers on this new Merck KGaA, Darmstadt, Germany documentary in an effort to shine a light on the untold stories of MS,” said George Pepper. “In line with our broader mission at Shift.ms, the aim of this documentary is to highlight the positive stories of our members, as well as the elements of MS that still remain under-represented. We hope that by bringing these stories out in the open we will be able to address the challenges that remain and drive further innovation in an effort to tackle these barriers.”

MS Inside Out - Documentary Trailer

MS Inside Out - Documentary Trailer

Click here to watch the documentary’s trailer.

MS Inside Out Experiences: Enabling others to better understand MS

4D VR Experience

4D VR Experience

To enhance understanding of what life with MS is really like, we have developed virtual 4D experiences that aim to simulate some of the symptoms experienced by people with MS in day to day life.

Our 4D VR experience tells a powerful and poignant story which revolves around the lives of two separate MS patients. The user experiences the unseen burden that accompanies the disease, feel how it affects everyone in their circle; such as young children seeing their parents unable to do the things they used to do, and show the personal sacrifices made by family members. Above all, it displays the changes everyone makes when the disease appears in their lives.

As this is a multi-sensory VR experience, you will feel the wind when you open the window, smell the freshly cut grass, and feel your heart race under times of stress.

Physical Experience

Physical Experience

An experience-rich physical activation immerses users into a day-in-the-life of a MS patient. The modular design takes users on a journey through familiar and unknown situations in home, travel, and work settings. It educates you through experiences that replicate the symptoms of MS and highlight how the condition affects the human body.

Physical MS Inside Out Experience Physical MS Inside Out Experience
Physical MS Inside Out Experience

Initiatives that enhance our understanding of the different perspectives

Understanding the Perspective of Women in MS

Understanding the Perspective of Women in MS

Merck KGaA, Darmstadt, Germany, launched a Report on the Socioeconomic Impact of MS on Women in Europe at ECTRIMS 2017, with an aim to investigate the many ways MS affects the life choices of female patients. The report also looked at sources and types of support, unmet needs in the community, and considered whether there are policy implications that would improve the environment for women with MS. 

The report involved a three-step process: a review of existing literature; an interview program with patient organizations; and a bespoke survey among 807 women with MS across eight countries in Europe including: Czech Republic, France, Germany, Italy, Poland, Spain, Sweden and the UK.  

Understanding the Perspective of Carers

Understanding the Perspective of Carers

In partnership with the International Alliance of Carer Organizations (IACO) and Eurocarers, Merck KGaA, Darmstadt, Germany, is conducting a survey of MS care partners from across Europe, the US and Canada. A report on its key findings will be presented at ECTRIMS 2018. The aim is to gain insight into the specific needs of care partners and how caring for somebody with MS can affect the physical, emotional and financial wellbeing of the carer.

The MS care partner initiative forms part of the wider Embracing Carers™ movement, which aims to fill the need for better support and recognition of carers.

Understanding the Perspective of MS Patients on Employment

Understanding the Perspective of MS Patients on Employment

The European Multiple Sclerosis Platform (EMSP) is firmly committed to an ultimate vision of a world without multiple sclerosis (MS).

The EMSP works on a three pillar approach to ensure that people with MS have a real voice in determining their own objectives and priorities:

  • campaigning through advocacy and awareness-raising;
  • collecting and sharing knowledge and expertise;
  • encouraging research and data collection.

The Work Foundation and the European Multiple Sclerosis Platform (EMSP), with support from Merck KGaA, Darmstadt, Germany and other industry sponsors, aims to break down the barriers to employment for people living with MS in Europe. It focuses on raising awareness of MS ‘brain health’, including better cognitive performance and reduced mental fatigue at work.

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